On a Personal Note – My Birthday Wish
Yep, today’s the day – my first “post-50th” birthday. Funny how birthdays take on a whole new meaning after 50. Instead of thinking about what to wear to the party, I think about how grateful I am to still be here so I can go to the party! Seriously, I can’t believe how many friends my age have passed or are fighting the health battles of their lives. Having had a couple of health scares myself this year, I’ve grown to appreciate every moment I’m here on this planet!
Since I just returned from photographing the first ever Chelsea’s Hope Lafora Research Symposium in La Jolla, CA, this birthday carries even more meaning as I reconnected with several families whose children have lost everything to this horrible disease. The pain these families have endured is indescribable. I had the honor of photographing many of them for the first Chelsea’s Hope Fundraiser back in 2009, and it’s been heartbreaking to watch their decline ever since. Several have passed away. This is a disease with no cure.
Thankfully, an incredible team of researchers have put the “Hope” back into Chelsea’s Hope with groundbreaking discoveries that will eventually lead to a cure. Because it is so rare, Lafora is considered an “orphan” disease, so little or no funding is given. I’m proud to say that Chelsea’s Hope has raised an incredible amount of funds over the last few years, but it’s still not enough.
My Birthday Wish
My birthday wish is for you to find it in your heart to give a little something (or a big something) to Chelsea’s Hope Lafora Children Research Fund in honor of my 51st birthday. Donations can be made through the website at : www.chelseashope.org .
Keywords: Real Life - Personal Stories, chelsea's hope, fundraising, giving back, lafora, lafora disease
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